About
Content creator, TikTok star, and online social media personality who ultimately shared his experience living with a rare genetic disorder. He became famous as one of the world's oldest people with Progeria, which causes rapid aging.
Before fame
As a child, he was diagnosed with Hutchinson-Gilford Progeria Syndrome.
Trivia
He underwent experimental treatment in Boston and was the first person to be administered a new drug for Progeria. He tragically died at the rather young age 28 after doctors initially said he would only live to around 12.
Family life
His younger sister Amber was also diagnosed with Progeria. They were in a 2026 documentary series titled How to be alive: Amber and Michiel.
Associated with
American girl Adalia Rose also shared her experience living with Progeria.
