About
Content creator who shared his experience living with a rare genetic disorder. He became famous as one of the world's oldest people with Progeria, which causes rapid aging. He died at age 28 after doctors intially said he would only live to 12.
Before fame
As a child, he was diagnosed with Hutchinson-Gilford Progeria Syndrome.
Trivia
He underwent experimental treatment in Boston and was the first person to be administered a new drug for Progeria.
Family life
His younger sister Amber was also diagnosed with Progeria. They were in a 2026 documentary series titled How to be alive: Amber and Michiel.
Associated with
American girl Adalia Rose also shared her experience living with Progeria.
