Ellie McGinn
#185735 Most Popular
About
YouTube star known for being a founding member of the non-profit organization A Cure For Ellie after she was diagnosed with Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation or LBSL. The non-profit raises money and awareness.
Before Fame
She was diagnosed with Leukodystrophy-LBSL in 2011 when she was three years old. A Cure for Ellie was set up in 2013 to help with the cost of the treatment and ongoing research into a cure.
Trivia
She won the National Organization for Rare Disorders' "Rare Impact Award" in 2017 for raising money through the "Ellie Challenge," which challenged people to pronounce the disease. She called the disease her "Awesome Disease."
Family Life
She has a younger sister named Vivian.
Associated With
A profile was done on her by The Today Show with Hoda Kotb and Kathie Lee Gifford in June 2017.
