Canadian whose rare skin disease, epidermolysis bullosa, has led to him being referred to as "The Butterfly Child" in the press. He has made headlines for his pursuit of a career in sports media and for his advocacy for those with his condition.
He attended a Catholic high school in Embrun, Ontario. He turned his focus to sports media when his disease made his dream of becoming a professional athlete impossible.
He gave an inspirational speech in front of 16,000 students on National We Day in Ottawa, Ontario in 2015.
He was cared for by his mother Tina, who would wrap his entire body in bandages once every two days. He has a younger sister named Noémy. He passed away from septic shock.
Actress Mia Farrow also spoke at National We Day 2015.